Adalia Rose Williams, a teenager with the genetic condition Hutchinson-Gilford progeria who became a hugely-successful YouTuber, has died at the age of 15 due to the condition. She shared tutorial videos and discussed what it was like to live with the condition with nearly three million YouTube subscribers.


The condition, a rare one that affects about 500 children across the world, is also known as Benjamin Button’s disease because its symptoms can resemble early aging. The average lifespan for children with the condition is about 13 years.

Adalia’s family announced that she died Wednesday at 7 p.m. on her Instagram account. In part, their tribute said “She touched MILLIONS of people and left the biggest imprint in everyone that knew her. She is no longer in pain and is now dancing away to all the music she loves… Thank you to all her doctors and nurses that worked for YEARS to keep her healthy.”

Her family has requested privacy while they process and mourn their loss.

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