Céline Dion Confronts Her Rare Neurological Disorder In New Documentary: ‘The People, I Miss Them’

Iconic singer Céline Dion is opening up about her battle with a neurological condition that has derailed her performance career. The trailer for her new documentary I Am: Céline Dion, released on May 23, offers a glimpse into the Canadian superstar’s private struggle with Stiff Person Syndrome.

Described by Dion as a “very rare neurological disorder,” Stiff Person Syndrome is a progressive condition that causes severe muscle stiffness and painful spasms and significantly impacts an individual’s physical mobility and even the ability to sing. The rare disorder has prevented the Grammy-winning artist from taking the stage over the past few years.

“My voice is the conductor of my life,” Dion solemnly reveals in the trailer. “I need my instrument.” The 55-year-old powerhouse performer expressed the immense difficulty of canceling shows, admitting, “It’s not hard to do a show, you know? It’s hard to cancel a show. I’m working hard every day, but I have to admit, it’s been a struggle. I miss it so much. The people, I miss them.”

Dion honestly navigates the debilitating health crisis, determined to one day return to the spotlight she has commanded for decades. In a primetime special interview with Today‘s Hoda Kotb, which will air June 11, the songstress shares even more intimate details about her journey. This marks her first broadcast interview since revealing her Stiff Person Syndrome diagnosis in December 2022.

The full documentary, slated to premiere on June 25, offers fans a raw, behind-the-scenes look at Dion’s ongoing fight to overcome her illness and reclaim the stage. Despite the significant challenges posed by her rare condition, the iconic artist remains steadfast in her resolve. “My goal is to see the Eiffel Tower again!” she told Vogue.

Dion’s openness about her health struggles is a testament to her strength and shines a much-needed spotlight on Stiff Person Syndrome. This debilitating neurological disorder, which can cause severe muscle stiffness, painful spasms, and impaired movement, affects an estimated 1 in 1 million people worldwide. Dion hopes she’ll raise awareness and inspire others who face similar battles.

“I have this strength within me,” she affirms. “I know that nothing is going to stop me.”

In February, Dion appeared at the Grammys to present the Album of the Year award to Taylor Swift.